На кончиках пальцев ⁽²⁰¹⁵⁾

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Titre original :

На кончиках пальцев

Durée :

1h 9min

Date de sortie :

November 2015

Réalisé par : Sergey Nurmamed, Dmitriy Altshuler-Kurchatov
Ecrit par : Roman Super

Nadia Kuznetsova is 28 years old, she lives in Veliky Novgorod, graduated from school and University here, and dreams of going to the sea - and getting her fingers back. Nadia has a rare genetic disease-epidermolysis bullosa, which is called "butterfly syndrome". The patient's skin is injured by any touch. The disease is incurable: as Nadia herself says, "I don't fight it – I live with it." She is fighting for something else - to lead the life of an ordinary person.